Perlu Network score measures the extent of a member’s network on Perlu based on their connections, Packs, and Collab activity.
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The answer is actually quite simple: women banded together and 1) raised their voices to demand better surgery and treatment options, and 2) women banded together to raise the money to fund that research. We have come together to support one another through our personal journeys and certainly there are far more educational resources now than there were 10 years ago, but we as a community, by and large, have not yet said "we want our daughters (and our sons) to have better ways of preventing the BRCA cancers that they face." In fact, he said that because women seem pretty happy with surgery and it is effective, he didn't really see the need for BRCA prevention research. The bottom line is that 2 years ago there was essentially no research focused on preventing BRCA cancers and now HeritX has not only launched a number of projects but has also brought together an international collaborative working group of scientists who believe in this goal and who are working on it with us. .