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Gooseling, Inc., founded by moms, creates video games to teach children social & life skills. Our first ios app Cavity Dragons is available in iTunes.
When my older son Aaron with Asperger’s was young, I immersed myself in ever-evolving goals for him, including school, social skills, comprehension, extracurricular activities and his emotional development. The holiday season always presented such fun and excitement while planning for how to make our Hanukkah celebration meaningful
Before I made appointments or considered using different hospitals I called to make sure I was clear on if the provider was in network, what kind of costs would be covered at what amount, and what my maximum out of pocket costs would be. I like to check highly regarded, scientifically based sites like National Institutes of Health, academic institutions, and evidence-based nonprofits such as the Crohn’s & Colitis Foundation. After diplomatically rushing us in for chest X-rays and tests, he told us that our son had a very rare 1 in 3 million birth defect in which his diaphragm was not fused shut, so the hole had allowed his intestines to move up into his chest. In my younger son’s case, he has chronic diseases including Crohn’s Disease which are lifelong conditions requiring continuous monitoring and care unless a cure is found.
The journey to finding out if your child has a serious disease or condition can be long and overwhelming. When my younger son confided he was having scary symptoms at 13 years old, our hearts froze with fear while keeping reassuring smiles on our faces for him
While struggling to do everything we could to help my son with high functioning autism/Aspergers progress and meet the ever changing goals we had for him, my husband and I wrestled with how and when to tell him his diagnosis. When he was 12 years old, we decided that I would tell our son while we were away on our annual family beach trip because it’s such a special time together and very relaxing. It’s kind of funny that I really felt like it was puzzle pieces since puzzle pieces is the actual symbol and icon for autism. Consider your child’s unique personality, developmental level, age, strengths, and challenges in thinking through how to approach the conversation.