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About me…
Those policies typically recommend to transfer hospital patients with “loss of reserves in energy, physical ability, cognition and general health” to outpatient or palliative care. (source) Translation: the sickest, oldest, disabled and those with underlying health conditions will not receive the care they need in favor of caring for the healthier, younger, and “socially useful” members of our communities. Your 65 year old grandparent who has no health concerns, my 4 year old son who has an intellectual disability and various health conditions, or a 30 year old new mother with asthma? But if the hospitals reach capacity and have to start making those hard decisions about who to treat and who to send home on palliative care?
he also thinks it’s hilarious to put pants on his head and pretend they’re his new hair. Occasionally he will stop and shake a piece out and attempt to fold it and place it in a pile, but it’s often more about play and fun. Life isn’t always about progress and getting to the next stage (I’m talking especially to my fellow enneagram 3s here). Splash in the sink, dance to the music, jump in a pile of laundry, press your face against the glass and make weird faces, whatever it might be.
* Having a blasé reaction to the news that your kid needed a stent put in his aorta during a heart cath isn’t “normal”. Typically they like to close those off, but ultimately they weren’t significant enough to need to be addressed during this cath and for now, the plan is to continue to monitor them and maybe address it in the future. If you’ve ever seen those images of pediatric x-rays that looks like the baby is in a blender, it’s very similar – except he had to do it lying down and velcroed to a wooden board since he’s so big. Cath trips are exhausting, for everyone, but ultimately we are thankful for the results of this trip and are praying that it truly is the right time to make additional adjustments to his meds.
We not only sold socks to our friends and family, but also asked for friends and family to sponsor a kid in AJ’s classroom so that we could send a pair of socks home with each kiddo to help them celebrate World Down Syndrome Day. PALS socks are adorable, mismatched socks that work perfectly to celebrate World Down Syndrome Day on 3/21. Although the copies we printed ourselves are pretty specific to AJ, we turned them into an editable canva template so that they can be updated with your own photos and text. It’s super simple, and it really adds a level of personalization to your socks when you’re delivering them to friends and family or if you’ve done a classroom fundraiser where you’ve asked for people to sponsor the kids in the classroom to all get a pair.