Amber Blackburn
Chronic illness blogger and advocate
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Hey all! I am a Registered Nurse turned Chronic Illness blogger and advocate. I work with the WEGO Health Network and the Chronic Disease Coalition to help get the word out about chronic diseases. I have my own blog, and I am a regular contributor to The Mighty. In 2018 I published a symptom tracker and I look forward to be publishing another early in 2020.
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The people who knew me 10 or 15 years ago probably don’t know that I am no longer working in my chosen field. A person can’t change their genetics. The version of me that was once embarrassed to let people from my past knew the person who I have become doesn’t exist anymore. That person has learned to hold her head up high and be proud of the things she has accomplished.
You brought light to all kinds of social injustices (which was LONG overdue) that caused protesting like we haven’t seen in the US in a LONG time. If you have a friend nearby, get together with them and see if you can schedule a time when you can socially distance walk with them as another means of human interaction. 2020 was hard no doubt and honestly, 2021 isn’t going to be easier just because we change the last number of the year. Sadly, it doesn’t look like this social isolation/ quarantine business for those of us who are immunocompromised is going to end any time soon.
These are a few of my favorite things”… I know there are a million and one gift guides floating around this time of year. There are guides for just about everyone from moms and dads to teachers or nurses. So I wanted to put together a list of some of my favorite items that would be good for someone who is chronically ill. *Link included are affiliate links and can produce a very small profit if product purchased through link included.
Let’s talk Amazon Prime Day! If you see any great deals you think I should add to my list please message me the fastest way will be either be through email or through DM on Instagram. — Smart display with Alexa – stay connected with video calling – Normally $89.99 – Pa Suction, Boundary Strips Included, Quiet, Self-Charging, Cleans Hard Floors to Medium-Pile Carpets.
In my most recent blog post I discuss 4 important lessons I’ve learned while living with chronic illness. I’d love to know if you feel the same about what I’ve learned. So go check out the article by clicking the link in my bio. And then “Chronic Illness Blog” to read this blog. I’d love to hear things you’ve learned from living with chronic illness so please comment below so we can chat. #chronicinsta #autoimmunediseases ##positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #anxietyproblems #workfromhomeperks #bossbabemindset #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry
New Monday, New Week....... After weeks and weeks of having very little energy and living in chronic pain and basically just throwing a pity party for myself. I decided today things change!! I worked with my calendar and got all the important dates on there. My drs appts, work meetings etc. Then I scheduled in some time for me. Maybe if I put it on the calendar it will actually get done. I also set my goals and intentions for the week and the whole month honestly. Hoping that being more intentional will help me be more productive. So here’s to October being a productive month!! Leave me a comment below and tell me a couple things. 1. Are you a planner ? 2. What are two goals you would like to accomplish this week/month! #chronicinsta #autoimmunediseases ##positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #anxietyproblems #workfromhomeperks #bossbabemindset #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry
Just something to think about. * * #chronicinsta #autoimmunediseases ##positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #anxietyproblems #workfromhomeperks #bossbabemindset #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry
Hello world. I can’t get out of bed today. Ugh. I really pushed myself the last couple of days to get some work done on my closet and room. The clutter and constant mess is driving me nuts. But there is only so much room. And my whole life has to fit in my bedroom for the most part. So there is a LOT a crammed in here. But I am working to purge and reorganize so things can be moved and I won’t have all the clutter. I never take steroids anymore bc they don’t agree with my adrenal glands. But I had steroids injected in both hips on Monday and then got my monthly dose with my Benlysta infusion Wednesday. So my body was on a steroid high thus being able to push myself to get things done. But most of us know the downside to pushing through to get something done is crashing and having to really rest for awhile. I slept over 16 hours last night. And I could honestly fall asleep right now. But I am happy with how much I got done. Such is life I guess. #chronicinsta #theworldseesnormal #positivethoughtsalways #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #mightywell #itsalwayssomething #healthcareselfcare #sorrynotsorry
I remember when I first got sick how broken I felt. I felt like my body had betrayed me and I couldn’t comprehend what life would look like in the absence of all the things I longed to happen one day. Like having my own babies and getting my masters degree. I felt like there was no way I could ever find happiness living with my new normal. As relationships failed and people walked out of my life I couldn’t help but think it was solely because I wasn’t the same. That it was because of my health. When in actuality it was their issues, not mine, that caused them to walk away. But I really wondered if I would ever again be happy or content. Or if I would always feel broken. In fact I was just talking about this with a good friend last night. We were talking about dating and why I haven’t. I honestly haven’t dated because most of the time it feels like no one would ever want to take on all that I am. And all that I have going on. So instead of opening myself up to be hurt again it’s easier to just be content being by myself. While that probably sounds crazy to most it’s a legit feeling that many of us living with chronic conditions feel. I will say as the years have gone by the feelings of hopelessness and brokenness seem to drift away. As I have had more time to accept my future and to realize that I am not just my health. I have come to accept that my illnesses will always be a 𝐩𝐚𝐫𝐭 𝐨𝐟 𝐦𝐞. But they are 𝐧𝐨𝐭 𝐭𝐡𝐞 𝐞𝐧𝐭𝐢𝐫𝐞 𝐦𝐞. So when the feelings of brokenness pop up I acknowledge them, deal with them and let them go. I don’t share these personal details for attention or so someone will tell me that I’m a catch and that mr right is out there. I share this because I know there are others feeling the same. Others wondering what their lives will look like now that they are broken. I share this in hope that even one person will see this and see that they aren’t alone. That their feelings aren’t crazy. I share this in hopes that someone going through the hard times of a new and scary diagnosis will read this and know that they won’t always feel broken. That one day they will feel whole again.
Another month, another infusion...... The last few months of these have been super hard on my body. If that continues I’ll have to decide if it’s worth it to continue. But for now we will continue. #chronicinsta #autoimmunediseases ##positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry #maskselfie #benlysta #benlystainfusion
#chronicinsta #autoimmunediseases ##positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #anxietyproblems #workfromhomeperks #bossbabemindset #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry
This is the face of Chronic Pain. I’m sure you each have your ideals about what chronic pain looks like. To some they assume we are all just junkies wanting our next high. While others who are closest to us have a small idea what living with chronic pain looks like. They see us at our worst when we can’t get out of bed. Or stand up straight, or walk because the pain is so severe. But honestly even they don’t what it’s really like because we shield them from it. We don’t want them to know just how bad it is. This is the face of someone who has hurt so badly for the last two days that she has only had FOUR hours of sleep in two days. This is the face of someone who has been discriminated by medical professionals solely based on the names of medication they have seen on my med list. This is the face of someone who lives with multiple chronic illnesses that all cause chronic pain. Chronic pain takes over your life. Your every waking moment. Every movement. There are days you wonder why you even fight. If it wouldn’t be easier not to. But I do. Because it’s what I do. Chronic pain isn’t what everyone makes it out to be. Its not searching for the next high like the media makes it out to be. It’s real and It’s hard. So if you know someone living with chronic pain give them the benefit of the doubt. If try cancel plans because they can’t get out of bed don’t make them feel badly. We can’t control our health Or in many cases the pain. Next time you hear about chronic pain and the judgement pops in your head. Think of me and all the others who just want our lives back. #chronicinsta #autoimmunediseases #positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry #chronicpain #chronicpainawareness #chronicpainlife
Life is a place of constant learning. Each and every experience teaches us something. No matter if it is positive or negative. The things we learned In the midst of a break-up or the loss of the job it doesn’t feel positive. It doesn’t feel like you’ve learned things that will make you a better person but you absolutely did!! Heaven knows I’ve made some MONUMENTAL mistakes in my past. Things I rarely talk about because there is no sense in bringing it up. But because of my past I am STRONGER! I am indeed a STRONGER, BETTER version of myself. #chronicinsta #autoimmunediseases ##positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #anxietyproblems #workfromhomeperks #bossbabemindset #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry
Fall is my favorite time of year and it’s finally starting to feel like it around here. So I got to sit outside for a bit. Which is something I haven’t been able to do in MONTHS. So I call that a win. Even if I get nothing else done today will go down as productive. Bc I was able to sit outside and get some natural vitamin D!! What does your Monday look like? #chronicinsta #autoimmunediseases ##positivethoughtsalways #butyoudontlookill #selfadvocate #migraineawareness #Fibromyalgiasucks #spooniesupport #endometriosiswarrior #lupusadvocate #theworldseesnormal #chronicillnessblogger #anxietyproblems #workfromhomeperks #bossbabemindset #mightywell #itsalwayssomething #sharingiscaring #migrainestrong #healthcareselfcare #sorrynotsorry
With all the crazy things happening in the world it’s super important that we take time to find ourselves. And invest in you. We can never fulfill all the dreams and aspirations for ourselves until we know who we are and how to love ourself. So don’t forget to find time for you today!! #quotes #motivation #qotd #quote #inspiration #quoteoftheday #motivationalquotes @motivationapp #dailyquotes #inspirational #quotestoliveby #mqapp1 #motivationapp #inspirationalquotes #instamotivation #instainspiration #downloadmotivation #instalife #instaquotes #motivationdaily