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No reminding us of how far behind River is to his peers or of the things he can’t do, but a focus on his achievements and the things he is doing well. But since then I have had so many comments, messages and emails telling me that they wish they were so lucky, and that parents evening is the worst day of the year for most parents who have children with Down syndrome. n’t do” You know, it’s not so long ago that children like mine weren’t even allowed inside a classroom with typical kids. As parents, we don’t need to be told about all the things our children can’t do.
look you in the eye and tell you that your child has Down syndrome, but they won’t look sad or full of pity. They’ll inform you of any immediate medical conditions that may concern you and your baby, yet they’ll also inform you that any other medical information can wait for now until you feel stronger. They’ll tell you that even though it’s a different path to what you imagined, your child is still going to be amazing and that your life is going to be incredible. In that moment you will no longer feel so frightened, you will no longer feel like your whole world has collapsed and you will no longer feel like your child’s life is ruined before it’s began.
Any other child just gets to go to school, yet our children have to prove they’re capable. Any other child just gets to go to swimming lessons, yet our children have to prove they can cope. To know that we can’t just decide to enrol our children in extra activities, we have to enquire whether they are welcome and fight for their place. Imagine how it feels to know that our children’s worth, is based on how much they act like yours.
You probably think I’m just another person who doesn’t understand, but I wanted to explain to you that I do. I wasn’t just another person staring at different, another person made to feel uncomfortable by a person not like myself. n’t watching your son because I thought he was less than, I was watching him because I thought he was so much more. It’s people like your son, that show parents like me a glimpse of our future and that we don’t need to fear it.