Jullie Flygare

Today, Project Sleep issued the following public statement after receiving many questions from community members about the upcoming feature-length movie, Ode to Joy. Los Angeles, CA, April 10, 2019 — Project Sleep would like to inform our supporters and the narcolepsy community that we are aware of Ode to Joy — an upcoming feature film depicting a main character portrayal of narcolepsy with cataplexy

It was our time to shine – our time to show Congress, NIH, & CDC that people with sleep disorders were organized and taking action. I never doubted our community’s fierce passion for the cause, but I worried about the timing, on the heels of the Sleep In and with short turnaround. On Thursday, March 28, 2019, an astonishing 31members of the U.S. House of Representatives co-signed this bipartisan letter in support of sleep disorders research and sleep awareness at NIH, DoD and CDC. For this personal blog post, I just wanted to share how incredibly vulnerable I felt throughout this short but intense advocacy project and how incredibly uplifted I felt by your support!

“One day you finally knew what you had to do, and began…” — Mary Oliver, The Journey Ten years ago, I ended my silence. I started writing a memoir about narcolepsy and moved to DC to begin advocating

5 Things You Might Not Know About Me – Drinking & Driving with Narcolepsy Warning: you may NOT like this post, but here goes a 5 Things You Might Not Know About Me – including drinking & driving with narcolepsy (but not at the same time): 1. My car is named Delicious