storiesaboutautism.com
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Stories about everyday life raising two boys with autism. Written from a dad's point of view :)
In my case neither Tommy or Jude have any concept of what Christmas is, let alone be able to come up with a list for Santa. The way the colours change, combined with the sensory feel they’ll get from moving the sequins, looks like a lot of fun. Something like this will definitely be on my list for Jude or Tommy and help make their playroom a more sensory area. It could be perfect in their playroom with the lights off Not something you’d automatically associate with buying a kid for Christmas, but this has lots of sensory benefits for our kids.
Our lives would be happy ones, maybe there’d be a few bumps along the way but that’s all they’d be, bumps. For Tommy and Jude far more challenging, and because of those challenges, I’ve experienced greater lows than I ever imagined possible. Trying to socialise and go out with friends, I’d fix on a smile and try to convince myself I was having a good time, but I wasn’t. As we found a way to help him, as he began smiling again, enjoying life, so did I.
Today we were able to change all of that when me and Tommy went to an ‘Autism Friendly’ showing of Toy Story 4 at ODEON Nor was it a big deal when he ran up and down our aisle, flapping, bouncing away, standing up, sitting down, lying on the floor, etc, etc. Which meant we were able to last the whole film, and got to enjoy the cinema experience without worrying about what everyone else thought. So overall I’d call that a very successful trip 😁 Going to the cinema is a simple experience that many would take for granted.
After 9 long months of waiting, appointments, referrals, and more appointments, today was the day. But having gone through this process with Jude 5 years ago, it seems no less strange than any of the other many professional titles involved with the welfare of my two boys. Our appointment today was as a result of some incredibly difficult months for Tommy, and some of the most trying times for us as a family. You can read more about our medication journey in the pieces below To medicate or not to medicate, that is the question